Catch up again
Apr. 10th, 2018 11:41 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
turpsA belated thank you to sperrywink and spasticat for the Easter cards. I enjoyed them both very much ♥
Since last I posted. I feel so much better now, as opposed to before when I was feeling better but managed to exhaust myself by doing too much too soon. Guess I'd forgotten how much celuitis takes it out of me. However, the rest of the family are falling apart health-wise.
In brief. James is off work with a flare up of his AMC and is back in his wheelchair. He has a doctor's appointment soon, though there's not much they can do. It's more for the sick-note for work.
Kayleigh collapsed in Asda last week and it's strongly suspected she may be diabetic, so she's having tests for that. She's still not well, and on top of that is having relationship issues that means her live in girlfriend may be moving out soon.
Mam was also really ill with a chest infection. But because she was so worried about me, then James, then Kayleigh, said nothing until it was close to her being admitted to hospital. She wasn't in the end but still isn't well at all.
And me, this is good news. James needed an appointment at the doctors, but I didn't get one for myself despite saying I'd do so soon because I knew I needed them to refer me to the lymphodemia clinic again. ( you may remember that previously they'd outright refused to see me until I'd lost a considerable amount of weight, and despite my doctor referring me again at the end of last year apparently it was still a no as I'd heard nothing ) My reasoning was I'd go and get an appointment when the infection was completely gone in my leg as it had caused it to swell and therefore I'd gained a few pounds. I told mam that and she was so angry. She really went off on one, said that was stupid, that I needed to think of myself for once, that what was two pounds when I was already 300 down and that I'd better not go see her that day as she was so angry. So I called the doctors, and amazingly managed to get an appointment, though with one of the doctors most people dislike as she has no personal bedside manner skills at all. However, she can write a referral letter, and did so after weighing me, and I now have a lymphodemia appointment at the end of June. It'll last for 2 hours, and we'll discuss what can be done, and who knows, I may have vaguely normal looking legs by the end of the year. And mam phoned and said sorry just after that first phone call and said she just worried, and I suppose she did have a point in the things she said, though maybe not the way she said them.
With that, I need to get ready for the doctors again. It feels like I haven't been away from the place lately.
But before that, something not medical related at all. We went to see Love, Simon yesterday, and had a row of baby fangirls in front and behind us. The ones in front even had a pride flag draped over their knees, and squeed and applauded at various points in the film. It made me smile a lot.
sperrywink and spasticat for the Easter cards. I enjoyed them both very much ♥Since last I posted. I feel so much better now, as opposed to before when I was feeling better but managed to exhaust myself by doing too much too soon. Guess I'd forgotten how much celuitis takes it out of me. However, the rest of the family are falling apart health-wise.
In brief. James is off work with a flare up of his AMC and is back in his wheelchair. He has a doctor's appointment soon, though there's not much they can do. It's more for the sick-note for work.
Kayleigh collapsed in Asda last week and it's strongly suspected she may be diabetic, so she's having tests for that. She's still not well, and on top of that is having relationship issues that means her live in girlfriend may be moving out soon.
Mam was also really ill with a chest infection. But because she was so worried about me, then James, then Kayleigh, said nothing until it was close to her being admitted to hospital. She wasn't in the end but still isn't well at all.
And me, this is good news. James needed an appointment at the doctors, but I didn't get one for myself despite saying I'd do so soon because I knew I needed them to refer me to the lymphodemia clinic again. ( you may remember that previously they'd outright refused to see me until I'd lost a considerable amount of weight, and despite my doctor referring me again at the end of last year apparently it was still a no as I'd heard nothing ) My reasoning was I'd go and get an appointment when the infection was completely gone in my leg as it had caused it to swell and therefore I'd gained a few pounds. I told mam that and she was so angry. She really went off on one, said that was stupid, that I needed to think of myself for once, that what was two pounds when I was already 300 down and that I'd better not go see her that day as she was so angry. So I called the doctors, and amazingly managed to get an appointment, though with one of the doctors most people dislike as she has no personal bedside manner skills at all. However, she can write a referral letter, and did so after weighing me, and I now have a lymphodemia appointment at the end of June. It'll last for 2 hours, and we'll discuss what can be done, and who knows, I may have vaguely normal looking legs by the end of the year. And mam phoned and said sorry just after that first phone call and said she just worried, and I suppose she did have a point in the things she said, though maybe not the way she said them.
With that, I need to get ready for the doctors again. It feels like I haven't been away from the place lately.
But before that, something not medical related at all. We went to see Love, Simon yesterday, and had a row of baby fangirls in front and behind us. The ones in front even had a pride flag draped over their knees, and squeed and applauded at various points in the film. It made me smile a lot.
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Date: 2018-04-10 05:27 pm (UTC)no subject
Date: 2018-04-11 03:49 pm (UTC)no subject
Date: 2018-04-11 05:57 am (UTC)no subject
Date: 2018-04-11 03:48 pm (UTC)Well, Kayleigh found out she's not diabetic, but of course, she's now in the dark about what actually is wrong.
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Date: 2018-04-11 01:05 pm (UTC)Marvin went to see Love, Simon with his girlfriend Monday. It's on my list, though I may wait for DVD for it. The last I saw was Call Me By Your Name, which I adored.
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Date: 2018-04-11 03:46 pm (UTC)I never got to see Call Me By Your Name, which was such a shame. I'll have to keep an eye out for it being released on DVD.
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Date: 2018-04-12 07:21 pm (UTC)Poor James! I hope he'll start feeling better again soon. *sends him many, many good thoughts*
That's very worrying to hear about Kayleigh. Even more so when from your comment below they don't know what's wrong after all. Hopefully it isn't anything serious. *keeps fingers crossed*
It can be so difficult to find the right words. Particularly when there's lots of emotions involved.
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Date: 2018-05-15 08:53 am (UTC)I've been waiting so long, it hardly seems real that they'll see me now.
Kayleigh is still suffering times where she feels sick and ill, but then it tends to go away. She hasn't gone back to the doctor though, is just suffering through it. Which seems silly to me, but she seems to think it's all she can do.
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Date: 2018-04-15 08:24 pm (UTC)no subject
Date: 2018-05-15 08:51 am (UTC)Hope things are going well for you ♥
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Date: 2018-04-17 11:58 am (UTC)I'm sorry you had to meet with the bedside mannerless doctor. But hooray for normal legs!
(Psst: I was inside a Lush store on Saturday and I thought of you -- :)
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Date: 2018-05-15 08:50 am (UTC)I hear you. I don't know if it's just that they're getting older or what. But I could do without the parents all getting ill at once.
Normal legs would be awesome.
I was inside a Lush store on Saturday and I thought of you
That makes me smile. I hope you bought something nice.
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Date: 2018-04-17 02:40 pm (UTC)Hope everyone else gets better soon!
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Date: 2018-05-15 08:49 am (UTC)I know! It feels like I've been waiting forever.
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Date: 2018-04-18 05:19 am (UTC)no subject
Date: 2018-05-15 08:48 am (UTC)You were busy, I was busy. It happens ♥
Safe travels today. I enjoyed yesterday so much.
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Date: 2018-04-21 06:34 pm (UTC)no subject
Date: 2018-05-15 08:47 am (UTC)